Friday, March 27, 2009. Chic-Fil-A Supports a Great Cause. Just a quick note to say thanks to the Hedgesville Elementary School PTO and Chic-Fil-A in Martinsburg. Looked like a very busy 3 hours so I am excited to forward a check on to further research! I also learned that there is another little boy in 1st grade at HES that has Chiari so Matthew will now have someone he can relate to! More on that later, today is my kickoff day for planning the walk in September. I am proud of her.

Arnold Chiari Malformation and Chronic Pain. No relief of pain after decompression and am now moving forward on a neurostimulation device. Tuesday, August 18, 2009. I have been doing great! Who could ask for more? .

ASBIHP - Associação Spina Bifida e Hidrocefalia de Portugal. O blog para a ASBIHP, uma Instituição Particular de Solidariedade Social, sem fins lucrativos, que tem por objectivo fundamental a promoção da qualidade de vida dos afectados de Spina Bifida e Hidrocefalia e o apoio às suas famílias e outras pessoas interessadas no seu bem-estar. Uarr; Grab this Headline Animator. net widget and share anywhere! Preços Médios dos Combustíveis. 24 de agosto de 2008. Na Quinta da Fonte Quente.

Monday, May 9, 2011. Today I added two more short videos on Ehlers-Danlos Syndrome that I found on You Tube. Thursday, February 24, 2011. Feb 28th is Rare Disease Day. Did you Know that February 28th is Rare Disease Day? What is a Rare Disease? Welcome to my Blog.

Chiari and my life as a Father, Husband and Firefighter. This entry was posted in Uncategorized on. I have come to accept that my balance will never be what it was but it is acceptable and livable. Two years post onset of symptoms and what I think I know. Well here are some of my ideas about that question. So what do we as Chiarians need? And I for one will stand by it.

Tuesday, March 26, 2013. Sad Ending to a New Beginning. It is with regret that I have come to the decision to completely discontinue the Chiari Carnival. I will leave the existing posts up in hopes that they may help others who suffer with this very complex condition. The Chiari Carnival Facebook page is changing to the Chronic Chiari Facebook page. And will link to blogs posting about Chiari or other articles about Chiari.

Doctors Corner - - Questions Answered. Chiari Doctors Map and List. Looking for a Chiari doctor in your area? Looking for Chiari articles? Please.

Chiari Support For Those Affected With Chiari. This is a site dedicated to those who are affected by Chiari and their friends and families that their disorder affects as well. Please feel to post any advice, feeling, or whatever else may be on your mind! We are all here for each other! Wednesday, September 14, 2011. Wednesday, September 7, 2011. Thursday, September 1, 2011. Wednesday, August 31, 2011. Tuesday, August 30, 2011. Tuesday, June 21, 2011.

Finding The Humor In It All. Week two of school is done. We are all still alive and I even hear laughter downstairs! That is a good thing. There were a couple big hurtles this week, but we have tried to find the humor in the situation.